Patient resources for 1p36 deletion syndrome
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Chromosome Disorder Outreach (CDO)
General support · Based in the United States
Visit organization -
1p36 DSA Facebook Support Group
Condition-specific resource · Peer support
Visit peer community -
1p36 Duplication/Deletion Facebook Group
Condition-specific resource · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information
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