Patient resources for 22q11.2 deletion syndrome
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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22q11.2 Society
Condition-specific resource · Based in the United States
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22q and You Center at Children's Hospital of Philadelphia (CHOP)
General support · Based in the United States
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22q Family Foundation
General support · Based in the United States
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Max Appeal
General support · Based in the United Kingdom
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Velo-Cardio-Facial Syndrome Educational Foundation (VCFSEF)
General support · Based in the United States
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22q11.2 Deletion / Duplication Syndrome Support Group (22qties) — Facebook
Condition-specific resource · Peer support
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International 22q11.2 Foundation Facebook Community
Condition-specific resource · Peer support
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The Mighty — DiGeorge Syndrome / 22q11.2 Topic Community
Condition-specific resource · Peer support
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Max Appeal Community (UK) — Facebook
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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NORD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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View report
Condition-specific resource
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View report
Condition-specific resource
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View report
Condition-specific resource
Read condition information
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