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Patient resources for Aicardi-Goutières syndrome

Places to find practical help and support. Each organization sets its own services and eligibility.

Communities and additional support

  • International Aicardi-Goutières Syndrome Association (IAGSA)

    Condition-specific resource · Based in Italy

    Visit organization

  • Children's Hospital of Philadelphia (CHOP) Leukodystrophy Program

    General support · Based in the United States

    Visit organization

  • Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN)

    General support · Based in the United States

    Visit organization

  • United Leukodystrophy Foundation (ULF)

    General support · Based in the United States

    Visit organization

  • Aicardi-Goutieres Syndrome Support Group

    Condition-specific resource · Peer support

    Visit peer community

  • IAGSA RareConnect Community

    General support · Peer support

    Visit peer community

Further information

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