Patient resources for Alpha-1-antitrypsin deficiency
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
-
Alpha 1 MZ Foundation
Condition-specific resource · Based in the Netherlands
Visit organization -
AlphaNet
Condition-specific resource · Based in the United States
Visit organization -
National Organization for Rare Disorders (NORD)
General support · Based in the United States
Visit organization -
Alpha-1 Antitrypsin Deficiency Support (Facebook Group)
Condition-specific resource · Peer support
Visit peer community -
Alpha-1 Antitrypsin Deficiency — ALA Community on Inspire
Condition-specific resource · Peer support
Visit peer community -
Alpha-1 Antitrypsin Deficiency — The Mighty
Condition-specific resource · Peer support
Visit peer community
Further information
-
GARD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information
Know a helpful resource?
Suggest an organization, specialist directory, registry, or support community for this condition. We review every suggestion before adding it.