Patient resources for Amyloidosis
Places to find practical help and support. Each organization sets its own services and eligibility.
Patient organizations and support
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Amyloidosis Foundation
Condition-specific resource
View NORD profile -
Amyloidosis Research Consortium, Inc. (ARC)
Condition-specific resource
View NORD profile -
Amyloidosis Support Groups
Condition-specific resource
View NORD profile -
Mackenzie’s Mission
General support
View NORD profile
Communities and additional support
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Amyloidosis UK
Condition-specific resource · Based in the United Kingdom
Visit organization -
International Society of Amyloidosis (ISA)
Condition-specific resource · Based in the United States
Visit organization -
Amyloidosis Community on Inspire
Condition-specific resource · Peer support
Visit peer community -
ASG Amyloidosis Facebook Groups
Condition-specific resource · Peer support
Visit peer community -
MyAmyloidosisTeam
Condition-specific resource · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
Read condition information -
NORD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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