Research & Literature
Explore the leading researchers and institutions driving advances in this area, and dive into the full body of literature that informs this resource.
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Johns Hopkins University
Baltimore, United States
Bloomberg (United States)
New York, United States
University of Bonn
Bonn, Germany
Johns Hopkins Hospital
Baltimore, United States
Johannes Gutenberg University Mainz
Mainz, Germany
Boston Children's Hospital
Boston, United States
Royal Manchester Children's Hospital
Manchester, United Kingdom
MACOM (United States)
Lowell, United States
Children's Hospital of Philadelphia
Philadelphia, United States
Seattle Children's Hospital
Seattle, United States
References
References (71)
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Mobilization of pelvic musculature and its effect on continence in classical bladder exstrophy: a single-center experience of 38 exstrophy repairs.
Varma KK, Mammen A, Kolar Venkatesh SK
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Prospective study on the incidence of bladder/cloacal exstrophy and epispadias in Europe.
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The radical soft-tissue mobilization (Kelly repair) for bladder exstrophy.
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Journal of pediatric urology 2015; (11(6)):364-5.
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Sexual Function, Social Integration and Paternity of Males with Classic Bladder Exstrophy following Urinary Diversion.
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The Journal of urology 2016; (195(2)):465-70.
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Omphalocele-Exstrophy-Imperforate Anus-Spinal Defects Complex: Associated Malformations in 12 New Cases.
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Pregnancy outcomes among patients with prior bladder exstrophy.
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A Rare Case of Genital Malformation with Omphalocele, Exstrophy of Bladder, Imperforate Anus and Spinal Defect Complex-Autopsy Findings.
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Primary female epispadias: Perineal approach or Kelly repair?
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Journal of pediatric urology 2018; (14(1)):33-39 doi:10.1016/j.jpurol.2017.08.017.
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Pelvic Organ Prolapse and Pregnancy in the Female Bladder Exstrophy Patient.
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How to close classic bladder exstrophy: Are subspecialty training and technique important?
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Complete Primary Repair of Bladder Exstrophy: Critical Analysis of the Long-term Outcome.
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Contemporary issues relating to transitional care in bladder exstrophy.
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Canadian Urological Association journal = Journal de l'Association des urologues du Canada 2018; (12(4 Suppl 1)):S15-S23 doi:10.5489/cuaj.5313.
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A Borderline Ovarian Tumour in a Patient with Classic Bladder Exstrophy; a Case Report.
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Irish medical journal 2018; (111(2)):695.
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Predictors of a successful primary bladder closure in cloacal exstrophy: A multivariable analysis.
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Journal of pediatric surgery 2019; (54(3)):491-494 doi:10.1016/j.jpedsurg.2018.06.030.
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Using social media for patient-reported outcomes: A study of genital appearance and sexual function in adult bladder exstrophy patients.
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Journal of pediatric urology 2018; (14(4)):322.e1-322.e6 doi:10.1016/j.jpurol.2018.05.029.
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One-stage combined delayed bladder closure with Kelly radical soft-tissue mobilization in bladder exstrophy: preliminary results.
Leclair MD, Faraj S, Sultan S, et al.
Journal of pediatric urology 2018; (14(6)):558-564 doi:10.1016/j.jpurol.2018.07.013.
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Modified staged repair of bladder exstrophy: a strategy to prevent penile ischemia while maintaining advantage of the complete primary repair of bladder exstrophy.
Chua ME, Ming JM, Fernandez N, et al.
Journal of pediatric urology 2019; (15(1)):63.e1-63.e7 doi:10.1016/j.jpurol.2018.09.005.
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Transitioning adolescents to adult nephrology care: a systematic review of the experiences of adolescents, parents, and health professionals.
Crawford K, Wilson C, Low JK, et al.
Pediatric nephrology (Berlin, Germany) 2020; (35(4)):555-567 doi:10.1007/s00467-019-04223-9.
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Exploration of Practice Patterns in Exstrophy Closures: A Comparison Between Surgical Specialties Using a National and Institutional Database.
Zaman MH, Davis R, Maruf M, et al.
Urology 2019; (131()):211-216 doi:10.1016/j.urology.2019.05.027.
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Urinary Continence Outcomes in Classic Bladder Exstrophy: A Long-Term Perspective.
Maruf M, Manyevitch R, Michaud J, et al.
The Journal of urology 2020; (203(1)):200-205 doi:10.1097/JU.0000000000000505.
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Penile Disassembly in Complete Primary Repair of Bladder Exstrophy: Time for Re-evaluation?
Kasprenski M, Maruf M, Davis R, et al.
Urology 2020; (137()):146-151 doi:10.1016/j.urology.2019.12.020.
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Bladder Herniation as an Auto-Augmentation Technique in Bladder Exstrophy: Initial Experience in Patients with Small Bladder Plate.
Sabetkish S, Kajbafzadeh AM
Urology 2020; (139()):151-155 doi:10.1016/j.urology.2020.02.013.
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Continence after BNR in the complete repair of bladder exstrophy (CPRE): A single institution expanded experience.
Di Carlo HN, Manyevitch R, Wu WJ, et al.
Journal of pediatric urology 2020; (16(4)):433.e1-433.e6 doi:10.1016/j.jpurol.2020.05.011.
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Assessment of the anterior osteotomy role in the restoration of normal pelvic floor anatomy for bladder exstrophy patients using pre and postoperative pelvic floor MRI.
Aboul Ela W, El Zoheiry M, Shouman A, et al.
Journal of pediatric urology 2020; (16(6)):835.e1-835.e9 doi:10.1016/j.jpurol.2020.09.004.
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Variant of Bladder Exstrophy With an Intact Penis: Surgical Options and Approach.
Ramji J, Eftekharzadeh S, Fischer KM, et al.
Urology 2021; (149()):e15-e17 doi:10.1016/j.urology.2020.11.046.
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Outcomes of pregnancy and delivery in women with continent lower urinary tract reconstruction: systematic review of the literature.
Bey E, Perrouin-Verbe B, Reiss B, et al.
International urogynecology journal 2021; (32(7)):1707-1717 doi:10.1007/s00192-021-04856-1.
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Width of pubic symphysis relating to age and sex in Koreans.
Hwang K, Wu X, Park CY
Journal of orthopaedic surgery and research 2021; (16(1)):430 doi:10.1186/s13018-021-02561-9.
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The Genomic Architecture of Bladder Exstrophy Epispadias Complex.
Beaman GM, Cervellione RM, Keene D, et al.
Genes 2021; (12(8)) doi:10.3390/genes12081149.
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Genetic Counseling for Bladder Exstrophy-Epispadias Complex.
Reutter H, Holmdahl G
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie 2021; (31(6)):468-471 doi:10.1055/s-0041-1740336.
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Pelvic Floor Anatomical Variations in Children With Exstrophy-Epispadias Complex Using Magnetic Resonance Imaging.
Peng Z, Huang Y, Tang W, et al.
Urology 2022; (165()):305-311 doi:10.1016/j.urology.2022.01.008.
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Association Among Pelvic Girdle Pain, Diastasis Recti Abdominis, Pubic Symphysis Width, and Pain Catastrophizing: A Matched Case-Control Study.
Starzec-Proserpio M, Lipa D, Szymański J, et al.
Physical therapy 2022; (102(4)) doi:10.1093/ptj/pzab311.
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Transitional cell carcinoma in untreated adult bladder exstrophy: A rare case report.
Handoko RR, Ismy J, Badiri I
Urology case reports 2022; (42()):102004 doi:10.1016/j.eucr.2022.102004.
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Insights and outcomes of single-staged repair of female bladder exstrophy-epispadias complex without osteotomy: 15 Years experience of a single institution.
Kajbafzadeh AM, Sabetkish S, Sabetkish N, et al.
Journal of pediatric urology 2022; (18(3)):355-361 doi:10.1016/j.jpurol.2022.03.018.
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Delayed ileal neobladder fistula caused by bladder stones: a case report.
Lu D, Wu Y, Liao S, et al.
BMC urology 2022; (22(1)):87 doi:10.1186/s12894-022-01040-5.
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An Interdisciplinary Approach to Müllerian Outflow Tract Obstruction Associated with Cloacal Malformation and Cloacal Exstrophy.
Sack BS, Speck KE, Hryhorczuk AL, et al.
Journal of clinical medicine 2022; (11(15)) doi:10.3390/jcm11154408.
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Kidney function outcomes in patients after complete primary repair of bladder exstrophy and penopubic epispadias: Results from the international bladder exstrophy consortium.
Joshi RS, Eftekharzadeh S, Shukla AR, et al.
Journal of pediatric urology 2023; (19(1)):34.e1-34.e9 doi:10.1016/j.jpurol.2022.04.018.
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Preoperative Bladder Capacity Predicts Social Continence following Bladder Neck Reconstruction in Children Born with Exstrophy-Epispadias Complex.
Bar-Yosef Y, Savin Z, Ekstein M, et al.
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie 2023; (33(6)):510-514 doi:10.1055/a-2003-1823.
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Preoperative and postoperative urinary NGAL levels in children with bladder exstrophy.
Gupta A, Bajpai M, Anand S, Ali A
Journal of nephrology 2023; (36(5)):1409-1414 doi:10.1007/s40620-022-01548-x.
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Complications of delayed and newborn primary closures of classic bladder exstrophy: Is there a difference?
Morrill CC, Manyevitch R, Haffar A, et al.
Journal of pediatric urology 2023; (19(3)):249.e1-249.e8 doi:10.1016/j.jpurol.2023.01.001.
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Analyzing the factors that contribute to the development of embryological classical type of bladder exstrophy.
Margiana R, Juwita W, Ima K, et al.
Anatomy & cell biology 2023; (56(4)):421-427 doi:10.5115/acb.23.056.
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Presentations of bladder exstrophy in a resource-limited setting and the role of Mainz II continent diversion for late referrals or failed primary closures: a multicentric report.
Calisti A, Belay K, Mombo A, et al.
La Pediatria medica e chirurgica : Medical and surgical pediatrics 2023; (45(2)) doi:10.4081/pmc.2023.323.
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Transition readiness and anxiety among adolescents with a chronic condition and their parents: A cross-sectional international study.
Tornivuori A, Kallio M, Culnane E, et al.
Journal of advanced nursing 2024; (80(2)):756-764 doi:10.1111/jan.15860.
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Multi-staged vs Single-staged Pelvic Osteotomy in the Modern Treatment of Cloacal Exstrophy: Bridging the Gap.
Haffar A, Hirsch AM, Crigger CB, et al.
Journal of pediatric surgery 2023; (58(12)):2308-2312 doi:10.1016/j.jpedsurg.2023.09.003.
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Long-Term Management of Problems in Cloacal Exstrophy: A Single-Institution Review.
Haney NM, Morrill CC, Haffar A, et al.
Journal of pediatric surgery 2024; (59(1)):26-30 doi:10.1016/j.jpedsurg.2023.09.013.
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The Effects of an Order-Assist Mobile Application on Pediatric Anesthesia Safety: An Observational Study.
Shim JW, Kim CJ, Kim JY, et al.
Children (Basel, Switzerland) 2023; (10(12)) doi:10.3390/children10121860.
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A case report of single umbilical artery combined with fetal bladder exstrophy in singleton pregnancy and related literature review.
Zhan J, Jia F, Gao Q, Xiao X
BMC pregnancy and childbirth 2024; (24(1)):122 doi:10.1186/s12884-024-06318-0.
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Surgical Treatment of Late Developmental Dysplasia of the Hip in Bladder Exstrophy: A Case Report.
Alhussainan TS, Alahmari MS, Essa Ahmed F, et al.
JBJS case connector 2024; (14(1)) doi:10.2106/JBJS.CC.23.00635.
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Adult patients treated for bladder exstrophy at a young age: What are their current demands?
Bazinet A, Filfilan A, Mokhtari N, et al.
Canadian Urological Association journal = Journal de l'Association des urologues du Canada 2024; doi:10.5489/cuaj.8601.
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Bilateral Obturator Osteotomy: A Novel Osteotomy for Bladder Exstrophy Closure.
Faraj S, Decante C, Alliot H, et al.
Journal of pediatric surgery 2024; (59(9)):1841-1845 doi:10.1016/j.jpedsurg.2024.03.058.
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Long-term psychosexual adjustment of adults born with classic bladder exstrophy.
Paraboschi I, Sampogna G, Di Grazia M, et al.
Journal of pediatric urology 2024; (20(4)):631-640 doi:10.1016/j.jpurol.2024.04.010.
PMID: 38710600 - 51
Modified penile reconstruction in classic bladder exstrophy: Can complete corporal covering of the urethral closure be achieved using incomplete disassembly technique?
Nikolaev VV, Demin NV
International braz j urol : official journal of the Brazilian Society of Urology 2024; (50(5)):585-594 doi:10.1590/S1677-5538.IBJU.2024.0194.
PMID: 39059018 - 52
Adult patients treated for bladder exstrophy at a young age What are their current demands?
Bazinet A, Filfilan A, Mokhtari N, et al.
Canadian Urological Association journal = Journal de l'Association des urologues du Canada 2024; (18(7)):E187-E193 doi:10.5489/cuaj.8601.
PMID: 39074989 - 53
EZH2 specifically regulates ISL1 during embryonic urinary tract formation.
Mingardo E, Kalanithy JC, Dworschak G, et al.
Scientific reports 2024; (14(1)):22909 doi:10.1038/s41598-024-74303-w.
PMID: 39358471 - 54
Mental health, psychosocial functioning, and health-related quality of life of children and adolescents with bladder exstrophy, cloacal exstrophy, and epispadias: A scoping review.
SooHoo M, Baker Z, Do C, et al.
Journal of pediatric urology 2024; (20(6)):1044-1056 doi:10.1016/j.jpurol.2024.09.013.
PMID: 39368869 - 55
Long-Term Orthopaedic and Radiological Outcomes of Symphysis Approximation without Osteotomy in Primary Bladder Exstrophy Repair.
Promm M, Hofbauer R, Brandl R, et al.
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie 2025; (35(3)):195-200 doi:10.1055/s-0044-1791961.
PMID: 39438003 - 56
Cloacal Exstrophy Closure Without Osteotomy and Immobilization: A Recipe for Failure.
Heap D, Haffar A, Crigger CB, et al.
Journal of pediatric surgery 2025; (60(1)):161995 doi:10.1016/j.jpedsurg.2024.161995.
PMID: 39442330 - 57
Bladder exstrophy-epispadias-cloacal exstrophy complex: characteristics, aetiologies, and epidemiologic findings.
Fendereski K, Schaeffer AJ
African urology 2024; (4(se1)):S20-S25 doi:10.36303/auj.0152.
PMID: 39687282 - 58
[Transition in mental health from childhood to adulthood: A scoping review].
Guerra-Ortega ADC, Rodríguez-Suárez CA, González-de la Torre H
Anales del sistema sanitario de Navarra 2025; (48(1)).
PMID: 39936888 - 59
Failure of Prenatal Ultrasonography to Identify Classic Bladder Exstrophy in a Heavily Screened Population.
Dekalo A, Friedman M, Ben-Chaim J, Bar-Yosef Y
Urology 2025; (200()):166-169 doi:10.1016/j.urology.2025.02.028.
PMID: 40015483 - 60
Multidisciplinary Management of Pregnancy in Bladder Exstrophy: A Case Report.
Batkoska M, Pečlin P
The American journal of case reports 2025; (26()):e946782 doi:10.12659/AJCR.946782.
PMID: 40159236 - 61
A Case of Giant Neobladder Stone of 5 Kg.
Hiruma K, Tasaki M, Anraku T, et al.
IJU case reports 2025; (8(3)):281-284 doi:10.1002/iju5.70026.
PMID: 40336748 - 62
Primary urothelial carcinoma of an ileal conduit; six decades after childhood bladder exstrophy surgery: a rare and late complication.
Ahmed A, Nasir S, Jalbani IK, Qadri A
World journal of surgical oncology 2025; (23(1)):211 doi:10.1186/s12957-025-03798-y.
PMID: 40450330 - 63
One-hundred-fifteen consecutive bladder exstrophies successfully closed in a single nationally commissioned centre.
Mariotto A, Keene JD, Bendon AA, et al.
Journal of pediatric urology 2025; (21(6)):1449-1457 doi:10.1016/j.jpurol.2025.06.017.
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Complete bladder duplication presenting in adulthood: A case report on reconstructive technique and reflections on translational urology in refugees.
Abramowitz D, Claeys W, Jamaer C, et al.
Frontiers in urology 2023; (3()):1080410 doi:10.3389/fruro.2023.1080410.
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Biomarkers for Early Detection of Cisplatin-Induced Nephrotoxicity.
Dimov N, Yaneva A, Valcheva E, et al.
Life (Basel, Switzerland) 2025; (15(9)) doi:10.3390/life15091432.
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Creation and Development of a Transgender Center of Excellence.
Blackman C, Parks J, Gilbert C, Liang F
Clinics in plastic surgery 2025; (52(4)):563-572 doi:10.1016/j.cps.2025.06.011.
PMID: 41093471 - 67
Study of Surface Area of Opened Bladder Converted into Bladder-plate in Cadavers and Comparison with Bladder-plate Surface Area in Clinical Cases of Bladder Exstrophy.
Kumari P, Rai RK, Gupta A, et al.
Journal of Indian Association of Pediatric Surgeons 2025; (30(6)):696-701 doi:10.4103/jiaps.jiaps_118_25.
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Health-related quality of life in Brazilian adults with bladder exstrophy-epispadias complex: a cross-sectional study on urinary continence, sexual function, and body image.
Onofre LS, Onofre PSC, Ascar PCB, et al.
Journal of pediatric urology 2026; (22(1)):105671 doi:10.1016/j.jpurol.2025.11.010.
PMID: 41390281 - 69
Multidisciplinary perioperative management of cloacal exstrophy bladder closure: A single institution's approach.
Heap D, Haffar A, Hoeck C, et al.
Journal of pediatric urology 2026; (22(2)):105697 doi:10.1016/j.jpurol.2025.12.013.
PMID: 41521080 - 70
Long-term sexual outcomes in classic bladder exstrophy: Insights from standardized scores.
Abdellaoui S, Cazzorla F, Neuville P, et al.
Journal of pediatric urology 2026; (22(3)):105713 doi:10.1016/j.jpurol.2025.105713.
PMID: 41549041 - 71
Psychiatric morbidity in bladder exstrophy-epispadias complex: A systematic review with a population-based case-control study.
Kymäläinen E, Pakkasjärvi N, Pape B, et al.
Journal of pediatric urology 2026; (22(3)):105795 doi:10.1016/j.jpurol.2026.105795.
PMID: 41719822