Patient resources for Dentinogenesis imperfecta
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Osteogenesis Imperfecta Federation Europe (OIFE)
Condition-specific resource · Based in Belgium
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Brittle Bone Disorders Consortium (BBDC)
General support · Based in the United States
Visit organization -
Brittle Bone Society
General support · Based in the United Kingdom
Visit organization -
Dentinogenesis Imperfecta (Facebook group)
Condition-specific resource · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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