Patient resources for Down syndrome

Places to find practical help and support. Each organization sets its own services and eligibility.

Communities and additional support

Canadian Down Syndrome Society (CDSS)

Condition-specific resource
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Down Syndrome Diagnosis Network (DSDN)

Condition-specific resource · Based in the United States
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Down Syndrome International (DSI)

Condition-specific resource · Based in the United Kingdom
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GiGi's Playhouse — Down Syndrome Achievement Centers

Condition-specific resource · Based in the United States
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Global Down Syndrome Foundation

Condition-specific resource · Based in the United States
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National Down Syndrome Congress (NDSC)

Condition-specific resource · Based in the United States
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National Down Syndrome Society (NDSS)

Condition-specific resource · Based in the United States
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Trisomy 21 Research Society (T21RS)

General support
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Down Syndrome Autism Connection (Facebook)

Condition-specific resource · Peer support
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Down Syndrome Self Advocates (Facebook)

Condition-specific resource · Peer support
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Down Syndrome — Inspire.com

Condition-specific resource · Peer support
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Parents of Children with Down Syndrome (Facebook)

Condition-specific resource · Peer support
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The Mighty — Down Syndrome Community

Condition-specific resource · Peer support
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DSDN Parent Community (App + Private Groups)

General support · Peer support
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Orphanet condition information

Condition-specific resource
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