Patient resources for Ectodermal dysplasia syndrome
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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ozED – Australian Ectodermal Dysplasia Support Group
Condition-specific resource · Based in Australia
Visit organization -
NFED Community Hub
General support · Peer support
Visit peer community -
NFED Private Facebook Group Network
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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