Patient resources for Essential thrombocythemia
Places to find practical help and support. Each organization sets its own services and eligibility.
Patient organizations and support
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MPN Education Foundation
General support · Based in the United States
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MPN Research Foundation
General support
View NORD profile
Communities and additional support
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HealthTree Foundation for Essential Thrombocythemia
Condition-specific resource · Based in the United States
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MPN Advocacy & Education International
General support · Based in the United States
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MPN Advocates Network
General support · Based in Switzerland
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MPN Cancer Connection
General support · Based in the United States
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MPN Voice
General support · Based in the United Kingdom
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Essential Thrombocythemia Empowerment & Support Group (Facebook)
Condition-specific resource · Peer support
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PatientsLikeMe – Essential Thrombocythemia
Condition-specific resource · Peer support
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The Mighty – Essential Thrombocythemia
Condition-specific resource · Peer support
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HealthTree Connect – ET Community
General support · Peer support
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myMPNteam
General support · Peer support
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Further information
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GARD condition information
Condition-specific resource
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NORD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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View report
Condition-specific resource
Read condition information
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