Patient resources for Fabry disease
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Fabry International Network (FIN)
Condition-specific resource
Visit organization -
MPS Society (UK)
General support · Based in the United Kingdom
Visit organization -
NORD (National Organization for Rare Disorders)
General support · Based in the United States
Visit organization -
Fabry Disease Info and Support (Facebook Group)
Condition-specific resource · Peer support
Visit peer community -
National Fabry Disease Foundation — Inspire Community
Condition-specific resource · Peer support
Visit peer community -
The Mighty — Fabry Disease Topic
Condition-specific resource · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information
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