Patient resources for Factor XIII Deficiency
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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American Thrombosis and Hemostasis Network (ATHN)
General support · Based in the United States
Visit organization -
EuroBloodNet / ENROL Registry
General support · Based in Spain
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European Haemophilia Consortium (EHC)
General support · Based in Belgium
Visit organization -
Foundation for Women & Girls with Blood Disorders (FWGBD)
General support · Based in the United States
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Hemophilia Federation of America (HFA)
General support · Based in the United States
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NORD — National Organization for Rare Disorders
General support · Based in the United States
Visit organization -
MyHemophiliaTeam
General support · Peer support
Visit peer community -
National Bleeding Disorders Foundation — Facebook
General support · Peer support
Visit peer community -
The Haemophilia Society UK — Facebook Group
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information
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