Patient resources for Familial Adenomatous Polyposis
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Polyposis Patient Support
Condition-specific resource · Based in the United Kingdom
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Cleveland Clinic Jagelman Hereditary Colorectal Cancer Registries
General support · Based in the United States
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Colorectal Cancer Alliance
General support · Based in the United States
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Desmoid Tumor Research Foundation (DTRF)
General support · Based in the United States
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Life's a Polyp Foundation
General support · Based in the United States
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Familial Adenomatous Polyposis (FAP)
Condition-specific resource · Peer support
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Familial Adenomatous Polyposis Community – Smart Patients
Condition-specific resource · Peer support
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Familial Adenomatous Polyposis Support Group
Condition-specific resource · Peer support
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Familial Adenomatous Polyposis – The Mighty
Condition-specific resource · Peer support
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FAP Gene Support Group Facebook Community
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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