Patient resources for Fragile X syndrome
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Cincinnati Fragile X Research and Treatment Center
Condition-specific resource · Based in the United States
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Fragile X Alliance Inc. (Australia)
Condition-specific resource · Based in Australia
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Fragile X Association of Australia (FXAA)
Condition-specific resource · Based in Australia
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Fragile X International (FraXI)
Condition-specific resource · Based in Belgium
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Fragile X Ireland (Irish Fragile X Society)
Condition-specific resource · Based in Ireland
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Our Fragile X World
Condition-specific resource · Based in the United States
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UC Davis MIND Institute Fragile X Research and Treatment Program
Condition-specific resource · Based in the United States
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Fantastically Fragile X – The FX Brag Room
Condition-specific resource · Peer support
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Fragile X Female Carrier Symptoms
Condition-specific resource · Peer support
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The Fragile X Group (FX Files)
Condition-specific resource · Peer support
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The Fragile X Society Community (UK)
Condition-specific resource · Peer support
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The Mighty: Fragile X Syndrome
Condition-specific resource · Peer support
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NFXF Community Support Network
General support · Peer support
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NFXF FXTAS Group
General support · Peer support
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NFXF Sibling & Self-Advocate Network
General support · Peer support
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Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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