Patient resources for Facioscapulohumeral dystrophy
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Chris Carrino Foundation for FSHD
General support · Based in the United States
Visit organization -
Solve FSHD
General support · Based in Canada
Visit organization -
FSHD Society Facebook Page
General support · Peer support
Visit peer community -
myMDteam
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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