Patient resources for Gaucher Disease
Places to find practical help and support. Each organization sets its own services and eligibility.
Find specialist care
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National Gaucher Foundation (NGF) — Specialist directory
National Gaucher Foundation (NGF)
Condition-specific resource
Find a specialist
Patient organizations and support
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National Gaucher Foundation (NGF)
Condition-specific resource · Based in the United States
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National Tay-Sachs and Allied Diseases Association
General support
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Society for Mucopolysaccharide Diseases
General support
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Communities and additional support
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Children's Gaucher Research Fund
Condition-specific resource · Based in the United States
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Gaucher Community Alliance
Condition-specific resource · Based in the United States
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Gauchers Association (UK)
Condition-specific resource · Based in the United Kingdom
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National Organization for Rare Disorders (NORD)
General support · Based in the United States
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Gaucher Disease Community Group (NGF-affiliated, Facebook)
Condition-specific resource · Peer support
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Gaucher Disease Discussion Group (Groups.io)
Condition-specific resource · Peer support
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Gaucher Disease Types 2 & 3 Support (Facebook)
Condition-specific resource · Peer support
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Gaucher Disease — Inspire Community
Condition-specific resource · Peer support
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MyGaucherTeam
Condition-specific resource · Peer support
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Further information
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Orphanet condition information
Condition-specific resource
Read condition information
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