Patient resources for Glycogen Storage Disease Type IV
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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AGSD-UK (Association for Glycogen Storage Disease – UK)
Condition-specific resource · Based in the United Kingdom
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Association for Glycogen Storage Disease (AGSD)
Condition-specific resource · Based in the United States
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Canadian Association for Glycogen Storage Disease
Condition-specific resource · Based in Canada
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APBD Research Foundation (APBDRF)
General support · Based in the United States
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Metabolic Support UK
General support · Based in the United Kingdom
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AGSD Facebook Page
General support · Peer support
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APBD Research Foundation – Monthly Patient & Caregiver Chats
General support · Peer support
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