Patient resources for Hereditary elliptocytosis
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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ERN-EuroBloodNet
General support · Based in the European Union
Visit organization -
EveryLife Foundation for Rare Diseases
General support · Based in the United States
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Foundation for Women and Girls with Blood Disorders (FWGBD)
General support · Based in the United States
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GARD — Genetic and Rare Diseases Information Center (NIH)
General support · Based in the United States
Visit organization -
Hereditary Spherocytosis — Facebook Community
Condition-specific resource · Peer support
Visit peer community -
Rare Diseases and Genetic Conditions — Inspire
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information
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