Patient resources for Mucopolysaccharidosis type 1
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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EveryLife Foundation for Rare Diseases
General support · Based in the United States
Visit organization -
Hurler Syndrome Hub
General support · Based in the United Kingdom
Visit organization -
International MPS Network
General support · Based in the United Kingdom
Visit organization -
Angel Analynn — Our Story with MPS1/Hurler Syndrome (Facebook)
General support · Peer support
Visit peer community -
MPS Society UK Facebook Page
General support · Peer support
Visit peer community -
National MPS Society Facebook Page
General support · Peer support
Visit peer community -
The Mighty — Hurler Syndrome Community
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information
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