Patient resources for Myotonic dystrophy
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Cure Myotonic Dystrophy UK Charity (Cure DM)
Condition-specific resource · Based in the United Kingdom
Visit organization -
Muscular Dystrophy Community on Inspire
Condition-specific resource · Peer support
Visit peer community -
MDF Private Facebook Groups (DM Community)
General support · Peer support
Visit peer community -
myMDteam
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information
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