Patient resources for Noonan syndrome
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Noonan Syndrome Association (NSA)
Condition-specific resource · Based in the United Kingdom
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Noonan Syndrome Patient Insights Network (PIN)
Condition-specific resource · Based in the United States
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CFC International
General support · Based in the United States
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Children's Hospital of Philadelphia — RASopathies Center
General support · Based in the United States
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Cincinnati Children's Hospital Medical Center — RASopathy Clinic
General support · Based in the United States
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Costello Syndrome Family Network (CSFN)
General support · Based in the United States
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GARD — Genetic and Rare Diseases Information Center
General support · Based in the United States
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NCI Advancing RAS/RASopathy Therapies (ART) Initiative
General support · Based in the United States
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Adults With Noonan Syndrome Support Group
Condition-specific resource · Peer support
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Noonan Syndrome Association UK — Facebook Page
Condition-specific resource · Peer support
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Noonan Syndrome Foundation Private Facebook Group
Condition-specific resource · Peer support
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Noonan Syndrome Parent Support Group — The MAGIC Foundation
Condition-specific resource · Peer support
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Noonan Syndrome Support Group — Australia
Condition-specific resource · Peer support
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RASopathies Network — Facebook Page
General support · Peer support
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Further information
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GARD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
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