Patient resources for Oculocutaneous albinism type 2
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
-
Albinism Fellowship of Australia (AFA)
Condition-specific resource
Visit organization -
Albinism International Databank (AID Registry)
Condition-specific resource · Based in the United States
Visit organization -
Global Albinism Alliance (GAA)
Condition-specific resource
Visit organization -
Hermansky-Pudlak Syndrome Network (HPS Network)
General support · Based in the United States
Visit organization -
Vision for Tomorrow Foundation
General support · Based in the United States
Visit organization -
Albinism Fellowship UK Facebook
Condition-specific resource · Peer support
Visit peer community -
The Mighty — Albinism Community
Condition-specific resource · Peer support
Visit peer community -
NOAH Connections Virtual Support Groups
General support · Peer support
Visit peer community -
NOAH Facebook Community
General support · Peer support
Visit peer community
Further information
-
GARD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information
Know a helpful resource?
Suggest an organization, specialist directory, registry, or support community for this condition. We review every suggestion before adding it.