Patient resources for Oculopharyngeal muscular dystrophy
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Muscular Dystrophy Association (MDA)
Condition-specific resource · Based in the United States
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National OPMD Registry – University of New Mexico
General support · Based in the United States
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myMDteam – Muscular Dystrophy Community
Condition-specific resource · Peer support
Visit peer community -
Living with OPMD – Ben's Friends
General support · Peer support
Visit peer community -
OPMD Association – Facebook Page
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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