Patient resources for Rett syndrome
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Girl Power 2 Cure / Rett University
Condition-specific resource · Based in the United States
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Ontario Rett Syndrome Association of Canada
Condition-specific resource · Based in Canada
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Rett Syndrome Europe
Condition-specific resource · Based in Luxembourg
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Reverse Rett
Condition-specific resource · Based in the United Kingdom
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MyRettTeam
Condition-specific resource · Peer support
Visit peer community -
RareConnect — Rett Syndrome
Condition-specific resource · Peer support
Visit peer community -
Rett Syndrome Family Support Forum
Condition-specific resource · Peer support
Visit peer community -
IRSF PONDS Groups (Parents of Newly Diagnosed)
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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