Patient resources for Hereditary persistence of fetal hemoglobin-sickle cell disease syndrome
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Foundation for Sickle Cell Disease Research (FSCDR)
Condition-specific resource · Based in the United States
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Sick Cells
Condition-specific resource · Based in the United States
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Sickle Cell Disease Association of America (SCDAA)
Condition-specific resource · Based in the United States
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Sickle Cell Disease Foundation (SCDF)
Condition-specific resource · Based in the United States
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Sickle Cell Warriors Inc
Condition-specific resource · Based in the United States
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DFW Sickle Cell Kids Crew
Condition-specific resource · Peer support
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Sickle Cell Warriors Community
Condition-specific resource · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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