Research & Literature
Explore the leading researchers and institutions driving advances in this area, and dive into the full body of literature that informs this resource.
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University of Alabama at Birmingham
Birmingham, United States
Baylor College of Medicine
Houston, United States
University of Southern California
Los Angeles, United States
Children's Hospital of Philadelphia
Philadelphia, United States
University of Pittsburgh
Pittsburgh, United States
Seattle Children's Hospital
Seattle, United States
Great Ormond Street Hospital
London, United Kingdom
Lurie Children's Hospital
Chicago, United States
University of British Columbia
Vancouver, Canada
Boston Children's Hospital
Boston, United States
References
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The Challenge of Asymptomatic Bacteriuria and Symptomatic Urinary Tract Infections in Patients with Neurogenic Lower Urinary Tract Dysfunction.
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Update on the Role of the Non-Canonical Wnt/Planar Cell Polarity Pathway in Neural Tube Defects.
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EAU/ESPU guidelines on the management of neurogenic bladder in children and adolescent part I diagnostics and conservative treatment.
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Factors impacting transition readiness in young adults with neuropathic bladder.
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Surgical Treatment of Tethered Cord Syndrome in Adults: A Systematic Review and Meta-Analysis.
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Integrin-Mediated Focal Anchorage Drives Epithelial Zippering during Mouse Neural Tube Closure.
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Prenatal counseling for myelomeningocele in the era of fetal surgery: a shared decision-making approach.
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Relationships among classifications of impairment and measures of ambulatory function for children with spina bifida.
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The incidence and effect of tethered cord release for tethered cord syndrome in patients with myelomeningocele: a population-based study.
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Journal of neurosurgery. Pediatrics 2020; (26(3)):269-274.
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Fetal Open and Closed Spina Bifida on a Routine Scan at 11 Weeks to 13 Weeks 6 Days.
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A Japanese man with spina bifida who successfully fathered a child following fertility treatment.
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Neurogenic Bladder: Epidemiology, Diagnosis, and Management.
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Multidisciplinary Management of Tethered Spinal Cord Syndrome in Children: Operationalizing an Outpatient Patient-Centered Workflow.
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Guideline No. 410: Prevention, Screening, Diagnosis, and Pregnancy Management for Fetal Neural Tube Defects.
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Journal of obstetrics and gynaecology Canada : JOGC = Journal d'obstetrique et gynecologie du Canada : JOGC 2021; (43(1)):124-139.e8 doi:10.1016/j.jogc.2020.11.003.
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Characteristics Associated With Depression, Anxiety, and Social Isolation in Adults With Spina Bifida.
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Urology 2021; (149()):255-262 doi:10.1016/j.urology.2020.11.016.
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Integument: Guidelines for the care of people with spina bifida.
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Journal of pediatric rehabilitation medicine 2020; (13(4)):543-548 doi:10.3233/PRM-200723.
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Bowel function and care: Guidelines for the care of people with spina bifida.
Beierwaltes P, Church P, Gordon T, Ambartsumyan L
Journal of pediatric rehabilitation medicine 2020; (13(4)):491-498 doi:10.3233/PRM-200724.
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Health promotion and preventive health care service guidelines for the care of people with spina bifida.
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Journal of pediatric rehabilitation medicine 2020; (13(4)):513-523 doi:10.3233/PRM-200718.
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Latex allergy guidelines for people with spina bifida.
Meneses V, Parenti S, Burns H, Adams R
Journal of pediatric rehabilitation medicine 2020; (13(4)):601-609 doi:10.3233/PRM-200741.
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The Transition to Adult Health Care in Youth With Spina Bifida: Theory, Measurement, and Interventions.
Holmbeck GN, Kritikos TK, Stern A, et al.
Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing 2021; (53(2)):198-207 doi:10.1111/jnu.12626.
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Prevalence and characteristics of shunt malfunction without ventricular size change at King Abdulaziz Medical City in Riyadh.
Albugami SM, Alwadi KW, Alrugaib AK, et al.
Neurosciences (Riyadh, Saudi Arabia) 2021; (26(1)):31-35 doi:10.17712/nsj.2021.1.20200099.
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Prenatal Repair and Physical Functioning Among Children With Myelomeningocele: A Secondary Analysis of a Randomized Clinical Trial.
Houtrow AJ, MacPherson C, Jackson-Coty J, et al.
JAMA pediatrics 2021; (175(4)):e205674 doi:10.1001/jamapediatrics.2020.5674.
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Systematic Classification of Spina Bifida.
Schindelmann KH, Paschereit F, Steege A, et al.
Journal of neuropathology and experimental neurology 2021; (80(4)):294-305 doi:10.1093/jnen/nlab007.
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Sexual Function of Men and Women With Spina Bifida: A Scoping Literature Review.
Streur CS, Corona L, Smith JE, et al.
Sexual medicine reviews 2021; (9(2)):244-266 doi:10.1016/j.sxmr.2020.09.001.
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Abdominal complications in patients with a ventriculoperitoneal shunt: proposal for management recommendations from a single pediatric tertiary center.
Basilotta Márquez YNI, Mengide JP, Liñares JM, et al.
Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery 2021; (37(7)):2223-2232 doi:10.1007/s00381-021-05121-y.
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The surgical treatment of spinal deformity in children with non-ambulatory myelomeningocele.
Tsirikos AI, Wordie SJ
The bone & joint journal 2021; (103-B(6)):1133-1141 doi:10.1302/0301-620X.103B6.BJJ-2020-2158.R1.
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Experience of 300 cases of prenatal fetoscopic open spina bifida repair: report of the International Fetoscopic Neural Tube Defect Repair Consortium.
Sanz Cortes M, Chmait RH, Lapa DA, et al.
American journal of obstetrics and gynecology 2021; (225(6)):678.e1-678.e11 doi:10.1016/j.ajog.2021.05.044.
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Asymptomatic bacteriuria and antibiotic resistance profile in children with neurogenic bladder who require clean intermittent catheterization.
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Factors Associated With Ambulation and Transfer Ability: A Study From the National Spina Bifida Patient Registry.
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American journal of physical medicine & rehabilitation 2022; (101(7)):652-658 doi:10.1097/PHM.0000000000001879.
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Video-urodynamic effects of vibegron, a new selective β3-adrenoceptor agonist, on antimuscarinic-resistant neurogenic bladder dysfunction in patients with spina bifida.
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International journal of urology : official journal of the Japanese Urological Association 2022; (29(1)):76-81 doi:10.1111/iju.14720.
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Early Outcome of Endoscopic Third Ventriculostomy With Choroid Plexus Cauterization Versus Ventriculoperitoneal Shunt as Primary Treatment of Hydrocephalus in Children With Myelomeningocele: A Prospective Cohort Study.
Adebayo BO, Kanu OO, Bankole OB, et al.
Operative neurosurgery (Hagerstown, Md.) 2021; (21(6)):461-466 doi:10.1093/ons/opab314.
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A qualitative interview study on successful pregnancies in women with spina bifida.
Tong CMC, Dew ME, Zimmerman KD, et al.
Journal of pediatric urology 2022; (18(1)):3.e1-3.e7 doi:10.1016/j.jpurol.2021.10.025.
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Urodynamic utilization in the adult spina bifida patient: An institutional review.
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What is the Role of Scoliosis Surgery in Adolescents and Adults with Myelomeningocele? A Systematic Review.
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Endoscopic third ventriculostomy with or without choroid plexus coagulation for myelomeningocele-associated hydrocephalus: systematic review and meta-analysis.
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Hydrocephalus in Spina Bifida.
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Significant brainstem dysfunction in neonates with myelomeningoceles: a comparison of prenatal versus postnatal closure.
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Team Approach: The Management of Adolescents and Adults with Scoliosis and Spina Bifida.
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