Patient resources for Inherited arrhythmogenic cardiomyopathy
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Children's Cardiomyopathy Foundation
Condition-specific resource · Based in the United States
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DCM Foundation / Genetic Cardiomyopathy Awareness Consortium (GCAC)
Condition-specific resource · Based in the United States
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ARVC-Selbsthilfe e.V.
General support · Based in Germany
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Cardiac Risk in the Young (CRY)
General support · Based in the United Kingdom
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Global Heart Hub
General support
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Arrhythmogenic Right Ventricular Dysplasia (ARVD/ARVC) Facebook Group
Condition-specific resource · Peer support
Visit peer community -
Cardiomyopathy UK ARVC Online Support Group
Condition-specific resource · Peer support
Visit peer community -
Cardiomyopathy UK Facebook Community
Condition-specific resource · Peer support
Visit peer community -
ARVC-Selbsthilfe Patient Forum
General support · Peer support
Visit peer community -
SADS Foundation Community (Inspire)
General support · Peer support
Visit peer community -
SADS Foundation ICD Support Group
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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