Patient resources for Beckwith-Wiedemann syndrome
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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American Beckwith-Wiedemann Spectrum Family Foundation (ABWSp Foundation)
Condition-specific resource · Based in the United States
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Beckwith Wiedemann Syndrome Support Group (UK)
Condition-specific resource · Based in the United Kingdom
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Nicklaus Children's Hospital — Center for Treatment of Beckwith-Wiedemann Syndrome
Condition-specific resource · Based in the United States
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BWS Awareness
General support · Based in the United States
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Children's Hospital of Philadelphia (CHOP) BWS Program
General support · Based in the United States
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NORD (National Organization for Rare Disorders)
General support · Based in the United States
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Beckwith Wiedemann Support Group (Facebook)
Condition-specific resource · Peer support
Visit peer community -
BWCFI Official Facebook Page
General support · Peer support
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BWS Awareness Facebook Page
General support · Peer support
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People Living With BWS (Facebook)
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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