Patient resources for Congenital nephrotic syndrome, Finnish type
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Munuais- ja maksaliitto (Finnish Kidney and Liver Association)
Condition-specific resource · Based in Finland
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Nephrotic Syndrome Foundation
Condition-specific resource · Based in the United States
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Nephrotic Syndrome Trust (NeST)
Condition-specific resource · Based in the United Kingdom
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ERKNet (European Rare Kidney Disease Reference Network)
General support
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National Organization for Rare Disorders (NORD)
General support · Based in the United States
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Living With Nephrotic Syndrome (Ben's Friends)
Condition-specific resource · Peer support
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NephSpace — Nephrotic Syndrome & FSGS Community (Inspire)
Condition-specific resource · Peer support
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Parents of Children with Congenital Nephrotic Syndrome of the Finnish Type
Condition-specific resource · Peer support
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Smart Patients — Nephrotic Syndrome
Condition-specific resource · Peer support
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The Mighty — Nephrotic Syndrome
Condition-specific resource · Peer support
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MyKidneyDiseaseTeam
General support · Peer support
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NephCure Community
General support · Peer support
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Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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