Patient resources for Congenital primary aphakia
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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American Foundation for the Blind (AFB)
General support · Based in the United States
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Children's Glaucoma Foundation
General support · Based in the United States
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Glaucoma Research Foundation
General support · Based in the United States
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NIH GARD – Genetic and Rare Diseases Information Center
General support · Based in the United States
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NORD – National Organization for Rare Disorders
General support · Based in the United States
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Aphakia Group (Facebook)
Condition-specific resource · Peer support
Visit peer community -
Aphakic Kids
General support · Peer support
Visit peer community -
For Little Eyes Community
General support · Peer support
Visit peer community -
MACS Charity Community (Facebook + WhatsApp)
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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