Patient resources for Cystic fibrosis
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Cystic Fibrosis Canada
Condition-specific resource · Based in Canada
Visit organization -
Claire's Place Foundation
General support · Based in the United States
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Emily's Entourage
General support · Based in the United States
Visit organization -
Rock CF Foundation
General support · Based in the United States
Visit organization -
US Adult CF Association (CF Roundtable)
General support · Based in the United States
Visit organization -
Cystic Fibrosis Facebook Group
Condition-specific resource · Peer support
Visit peer community -
Cystic-Fibrosis.com (Health Union)
Condition-specific resource · Peer support
Visit peer community -
CysticLife.org
Condition-specific resource · Peer support
Visit peer community -
Inspire.com — Cystic Fibrosis Community
Condition-specific resource · Peer support
Visit peer community -
Smart Patients — Cystic Fibrosis
Condition-specific resource · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information
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