Patient resources for Familial cerebral cavernous malformation
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Brain Vascular Malformation Consortium (BVMC)
Condition-specific resource · Based in the United States
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Be Brave for Life Foundation
General support · Based in the United States
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Cavernoma Ireland
General support · Based in Ireland
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Cavernoma Society
General support · Based in the United Kingdom
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Focused Ultrasound Foundation
General support · Based in the United States
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Alliance to Cure Cavernous Malformation Community (Facebook Group)
Condition-specific resource · Peer support
Visit peer community -
RareConnect — Cavernous Angioma Community
Condition-specific resource · Peer support
Visit peer community -
ABTA Connections — Inspire (CCM discussions)
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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