Patient resources for Mastocytosis
Places to find practical help and support. Each organization sets its own services and eligibility.
Patient organizations and support
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MastoKids
General support · Based in the United States
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The Mast Cell Disease Society, Inc.
General support
View NORD profile
Communities and additional support
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HealthTree Foundation for Systemic Mastocytosis
Condition-specific resource · Based in the United States
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International Mastocytosis & Mast Cell Diseases Awareness Day Committee
Condition-specific resource
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Mastocytosis Society Canada (MSC)
Condition-specific resource · Based in Canada
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The Australasian Mastocytosis Society (TAMS)
Condition-specific resource · Based in Australia
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Mast Cell Action (UK)
General support · Based in the United Kingdom
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Mast Cell Connect
General support · Based in the United States
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The American Initiative in Mast Cell Diseases (AIM/AIMCD)
General support · Based in the United States
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HealthTree Connect for Mastocytosis
Condition-specific resource · Peer support
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Mast Cell Diseases Unite (Inspire)
General support · Peer support
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TMS Mast Cell Disease Support Group (Facebook)
General support · Peer support
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Further information
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GARD condition information
Condition-specific resource
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NORD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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View report
Condition-specific resource
Read condition information
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