Patient resources for Neural tube defect

Places to find practical help and support. Each organization sets its own services and eligibility.

Patient organizations and support

Easter Seals

General support
View NORD profile
Hydrocephalus Canada

General support
View NORD profile
International Federation for Spina Bifida and Hydrocephalus

General support
View NORD profile
Pathways Awareness Foundation

General support
View NORD profile
Shine

General support
View NORD profile
Spina Bifida and Hydrocephalus Canada

General support
View NORD profile
Spina Bifida Hydrocephalus Queensland

General support
View NORD profile

Fetal Health Foundation

General support · Based in the United States
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Hydrocephalus Association

General support · Based in the United States
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International Federation for Spina Bifida and Hydrocephalus (IF Global)

General support · Based in Belgium
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March of Dimes

General support · Based in the United States
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Spina Bifida Association (SBA)

General support · Based in the United States
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Spina Bifida Resource Network (SBRN)

General support · Based in the United States
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The Laurita Spina Bifida Project

General support · Based in the United States
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SBRN Virtual Support Groups

General support · Peer support
Visit peer community
Spina Bifida Support Group (Facebook)

General support · Peer support
Visit peer community
The Mighty — Spina Bifida Community

General support · Peer support
Visit peer community

GARD condition information

Condition-specific resource
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NORD condition information

Condition-specific resource
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Orphanet condition information

Condition-specific resource
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Suggest an organization, specialist directory, registry, or support community for this condition. We review every suggestion before adding it.