Patient resources for Neurofibromatosis type 1
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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CHOP Neurofibromatosis Program
Condition-specific resource · Based in the United States
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Texas Neurofibromatosis Foundation
Condition-specific resource · Based in the United States
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UAB Neurofibromatosis Program
Condition-specific resource · Based in the United States
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Washington University NF Center
General support · Based in the United States
Visit organization -
Neurofibromatosis Network Facebook Page
Condition-specific resource · Peer support
Visit peer community -
NF Network Support Community on Inspire
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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