Patient resources for Primary lymphedema
Places to find practical help and support. Each organization sets its own services and eligibility.
Patient organizations and support
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Canadian Lymphedema Framework
Condition-specific resource
View NORD profile -
Brylan’s Feat Foundation
General support
View NORD profile
Communities and additional support
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Canadian Lymphedema Framework (CLF)
Condition-specific resource · Based in Canada
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Lymphedema Advocacy Group (LAG)
Condition-specific resource · Based in the United States
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National Lymphedema Network (NLN)
Condition-specific resource · Based in the United States
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Lymphoedema Support Network (LSN)
General support · Based in the United Kingdom
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Lymphedema — Smart Patients
Condition-specific resource · Peer support
Visit peer community -
Lymphedema — The Mighty
Condition-specific resource · Peer support
Visit peer community -
National Lymphedema Network on Inspire
Condition-specific resource · Peer support
Visit peer community -
Lymphie Strong Facebook Groups
General support · Peer support
Visit peer community
Further information
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NORD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information
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