Patient resources for Recessive X-linked ichthyosis
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
-
European Network for Ichthyosis (ENI)
Condition-specific resource · Based in the European Union
Visit organization -
GlobalSkin (International Alliance of Dermatology Patient Organizations)
General support
Visit organization -
Ichthyosis Support Group — Facebook Page
Condition-specific resource · Peer support
Visit peer community -
RareConnect Ichthyosis Community
Condition-specific resource · Peer support
Visit peer community -
FIRST Closed Facebook Support Groups
General support · Peer support
Visit peer community
Further information
-
GARD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information
Know a helpful resource?
Suggest an organization, specialist directory, registry, or support community for this condition. We review every suggestion before adding it.