Patient resources for Retinitis pigmentosa
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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A Race Against Blindness
General support · Based in the United States
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Research to Prevent Blindness
General support · Based in the United States
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RP Gene Research Foundation
General support · Based in the United States
Visit organization -
Retinitis Pigmentosa and Friends (Discord)
Condition-specific resource · Peer support
Visit peer community -
Retinitis Pigmentosa Support Group (The RP Family Group)
Condition-specific resource · Peer support
Visit peer community -
RP Discussion & Support (Retinitis Pigmentosa)
Condition-specific resource · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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