Patient resources for Sjögren-Larsson syndrome
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Foundation for Ichthyosis & Related Skin Types (FIRST)
General support · Based in the United States
Visit organization -
SLS Network Community
General support · Based in the United States
Visit organization -
United Leukodystrophy Foundation (ULF)
General support · Based in the United States
Visit organization -
Ichthyosis Support Group (ISG) Facebook
General support · Peer support
Visit peer community -
SLS Network Community (Facebook)
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information
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