Patient resources for Von Willebrand Disease
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
-
American Thrombosis and Hemostasis Network (ATHN)
General support · Based in the United States
Visit organization -
Foundation for Women & Girls with Blood Disorders (FWGBD)
General support · Based in the United States
Visit organization -
Hemophilia Federation of America (HFA)
General support · Based in the United States
Visit organization -
National Bleeding Disorders Foundation (NBDF)
General support · Based in the United States
Visit organization -
VWD Alliance
General support · Based in the United Kingdom
Visit organization -
VWD Connect Foundation (VCF)
General support · Based in the United States
Visit organization -
World Federation of Hemophilia (WFH)
General support · Based in Canada
Visit organization -
The Mighty — Von Willebrand Disease
Condition-specific resource · Peer support
Visit peer community -
Von Willebrand Disease Support Group (Facebook)
Condition-specific resource · Peer support
Visit peer community -
Von Willebrand's Disease — LivingWithVWD.org (BensFriends)
Condition-specific resource · Peer support
Visit peer community -
MyHemophiliaTeam — VWD Community
General support · Peer support
Visit peer community -
VWD Sisterhood (Facebook/Instagram/Zoom)
General support · Peer support
Visit peer community
Further information
-
Orphanet condition information
Condition-specific resource
Read condition information
Know a helpful resource?
Suggest an organization, specialist directory, registry, or support community for this condition. We review every suggestion before adding it.