Patient resources for Congenital sucrase-isomaltase deficiency
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Alaska Native Tribal Health Consortium (ANTHC) — CSID Program
General support · Based in the United States
Visit organization -
CoRDS — Coordination of Rare Diseases at Sanford
General support · Based in the United States
Visit organization -
Gastrointestinal Society (Badgut.org)
General support
Visit organization -
GiKids (NASPGHAN Patient Education)
General support · Based in the United States
Visit organization -
HealthWell Foundation — CSID Fund
General support · Based in the United States
Visit organization -
CSID – Sucrase Isomaltase Deficiency (Inspire)
Condition-specific resource · Peer support
Visit peer community -
CSID Support – Living with Sucrose Intolerance
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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NORD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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View report
Condition-specific resource
Read condition information -
View report
Condition-specific resource
Read condition information
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