Patient resources for Ehlers Danlos Syndrome (EDS)
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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The Ehlers-Danlos Society
Condition-specific resource · Based in the United States
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Chronic Pain Partners / EDS Awareness
General support · Based in the United States
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Connective Tissue Coalition (CTC)
General support · Based in the United States
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FIGHT vEDS
General support · Based in the United States
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Hypermobility Syndromes Association (HMSA)
General support · Based in the United Kingdom
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The Zebra Network
General support · Based in the United States
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Ehlers Danlos Syndromes OFFICIAL Support Group (Facebook)
Condition-specific resource · Peer support
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Ehlers-Danlos Syndrome Community on Smart Patients
Condition-specific resource · Peer support
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Ehlers-Danlos Syndrome Support Community (Ben's Friends)
Condition-specific resource · Peer support
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Ehlers-Danlos Syndrome — The Mighty
Condition-specific resource · Peer support
Visit peer community -
r/ehlersdanlos Official Discord
Condition-specific resource · Peer support
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EDS and HSD on Inspire
General support · Peer support
Visit peer community
Further information
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Orphanet condition information
Condition-specific resource
Read condition information
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