Patient resources for Focal, segmental or multifocal dystonia
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
-
Dystonia Coalition
Condition-specific resource · Based in the United States
Visit organization -
Dystonia Europe
Condition-specific resource
Visit organization -
Dystonia Medical Research Foundation (DMRF)
Condition-specific resource · Based in the United States
Visit organization -
Dystonia UK
Condition-specific resource · Based in the United Kingdom
Visit organization -
Global Dystonia Registry
Condition-specific resource · Based in the United States
Visit organization -
Tyler's Hope for a Dystonia Cure
Condition-specific resource · Based in the United States
Visit organization -
Benign Essential Blepharospasm Research Foundation (BEBRF)
General support · Based in the United States
Visit organization -
DMRF Canada
General support
Visit organization -
Dysphonia International
General support · Based in the United States
Visit organization -
National Spasmodic Torticollis Association (NSTA)
General support · Based in the United States
Visit organization -
Cervical Dystonia Support Forum (DMRF Facebook Group)
Condition-specific resource · Peer support
Visit peer community -
Dystonia Community on The Mighty
Condition-specific resource · Peer support
Visit peer community -
Dystonia Support & Awareness (DMRF Facebook Group)
Condition-specific resource · Peer support
Visit peer community
Further information
-
Orphanet condition information
Condition-specific resource
Read condition information
Know a helpful resource?
Suggest an organization, specialist directory, registry, or support community for this condition. We review every suggestion before adding it.