Patient resources for Gastroschisis
Places to find practical help and support. Each organization sets its own services and eligibility.
Patient organizations and support
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Avery’s Angels Gastroschisis Foundation
Condition-specific resource
View NORD profile
Communities and additional support
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Birth Defect Research for Children
General support · Based in the United States
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Fetal Health Foundation
General support · Based in the United States
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March of Dimes
General support · Based in the United States
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North American Fetal Therapy Network (NAFTNet)
General support · Based in the United States
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Short Bowel Syndrome Foundation
General support · Based in the United States
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AAGF Adult Gastroschisis Survivors (Private Group)
Condition-specific resource · Peer support
Visit peer community -
Exomphalos & Gastroschisis UK Facebook Group
Condition-specific resource · Peer support
Visit peer community -
Global Gastroschisis Foundation Facebook Community
Condition-specific resource · Peer support
Visit peer community -
Inspire — Pregnancy & Parenting (gastroschisis discussions)
Condition-specific resource · Peer support
Visit peer community -
The Mighty — Gastroschisis Topic
Condition-specific resource · Peer support
Visit peer community -
AAGF Parents of Pediatric Survivors (Private Group)
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
Read condition information -
NORD condition information
Condition-specific resource
Read condition information -
Orphanet condition information
Condition-specific resource
Read condition information -
View report
Condition-specific resource
Read condition information
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