Patient resources for Interstitial cystitis
Places to find practical help and support. Each organization sets its own services and eligibility.
Communities and additional support
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Interstitial Cystitis Network (ICN)
Condition-specific resource · Based in the United States
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International Painful Bladder Foundation (IPBF)
General support · Based in the Netherlands
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MAPP Research Network (Multidisciplinary Approach to the Study of Chronic Pelvic Pain)
General support · Based in the United States
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ICA/Inspire Interstitial Cystitis Community
Condition-specific resource · Peer support
Visit peer community -
Interstitial Cystitis / Bladder Pain Syndrome Support Group
Condition-specific resource · Peer support
Visit peer community -
Interstitial Cystitis — PatientsLikeMe
Condition-specific resource · Peer support
Visit peer community -
IC/BPS on The Mighty
General support · Peer support
Visit peer community -
ICA IC/BPS Facebook Support Group
General support · Peer support
Visit peer community
Further information
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GARD condition information
Condition-specific resource
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Orphanet condition information
Condition-specific resource
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