Skip to content
How It Works
Explore
Ask a Question Resources Pricing
Who It's For
Patients
Decode results, prep for appointments, weigh options.
Caregivers & advocates
Carry the research load for someone you love.
Providers & clinicians
Resources for patients in your practice.
Log In Sign Up

Patient resources for Isolated rare lymphatic malformation

Places to find practical help and support. Each organization sets its own services and eligibility.

Communities and additional support

  • Lymphatic Education & Research Network (LE&RN)

    Condition-specific resource · Based in the United States

    Visit organization

  • Lymphatic Malformation Institute (LMI)

    Condition-specific resource · Based in the United States

    Visit organization

  • Vascular & Lymphatic Malformation Network

    Condition-specific resource · Based in Australia

    Visit organization

  • Boston Children's Hospital Vascular Anomalies Center (VAC)

    General support · Based in the United States

    Visit organization

  • Children's Hospital of Philadelphia Comprehensive Vascular Anomalies Program (CVAP)

    General support · Based in the United States

    Visit organization

  • Lillian Bay Foundation

    General support · Based in the United States

    Visit organization

  • Lymphangiomatosis & Gorham's Disease Alliance (LGDA)

    General support · Based in the United States

    Visit organization

  • Vascular Birthmarks Foundation (VBF)

    General support · Based in the United States

    Visit organization

  • Lymphatic Malformation Awareness Group

    Condition-specific resource · Peer support

    Visit peer community

  • LGDA Private Facebook Support Group (Adults and Parents)

    General support · Peer support

    Visit peer community

Further information

Know a helpful resource?

Suggest an organization, specialist directory, registry, or support community for this condition. We review every suggestion before adding it.